Ordered a small pizza from California street and headed out for the bus. I'm acquainted well enough to wing it but Im still attached to my #22 and #3/#2 buses. I got off at Van Ness and walked up to california and over to the pizza place. He had pizza once already but told me he wished it was a warm and crunchy crust. That was the purpose of picking up on the way.
When I stepped out of the elevator I could see he was just getting up and sitting on the edge of his bed. He said I was JUST thinking about you. He looked at the box and said that's California Street pizza. How the hell do you know that? He said I recognize the box. This is a completely non descript box - white with a red thing on top. Anyway... He had a piece said mmmmmm, I said lets go to the roof and sit in the sun and I'll read to you while you eat. His wheelchair is missing, but his phone charger has miraculously reappeared and his phone is plugged in. He handed me an email to read to him from Dona (Somerville) while they looked for a chair for him to use.
We eventually got to the roof, pizza in lap. This chair did not have foot rests so he used his own feet to scuttle along with me re-directing him as needed. As we come out of his room all the CNAs and nurses are saying oooo Mr Piro is up! Look he has pizza! And hes is crossing his arms over the box to others lol!! On a completely unrelated note, he asks every single person/nurse/cna/therapist we meet where they are from so he can know something about them.. We sat in the middle of the roof in straight sun. I brought his NPR hat and sunglasses which he donned. Pizza is a thin crust but quite tasty chicken alfredo albeit a little cheese oily. He asked for a soda from the machine.
He ate and I read him the print outs on Astaxanthin, and CoQ10. He loved hearing about both and asked me to please get that information to James and Susan (they are both good for neurodegenerative disease) and to Arlene as well. I cant really reach Arlene communication wise except for text, and Im surely not texting her information about that while shes vacationing in France. I also don't have Uncle James' email on my laptop. For all the setting up I did on this thing I completely forgot to transfer my email stuff...And my damn ecig stuff. If anyone blood related to me can please pass that along or point them to this blog I would appreciate it. I dont know if they visit this.
You can use my gmail to access: andrealpiro@gmail.com
Good explanation of CoQ10
Exhaustive article on Astaxanthin
Also got a get well card from some Canadian friends at the house here that I brought up and read.
While he really appreciates hearing from everyone he is still adamantly against visitors of any sort. I told him that dad called him back yesterday and he didn't answer....probably because he was on the line with me. He said I hope they all know I don't answer the phone. So email is still probably the best way to reach him. You can find the email on the right side of this blog.
And speaking of email....when we got back downstairs the case worker handed us an email from Dad. He did not have Mary's cell in his phone, which was what Dad was emailing about, so I put it in and walked him through the buttons on his phone again and how to get to the phonebook and select a person to call. He wanted to sleep. But he needed to pee and its dark. His institutional lunch was on the table I pulled the yogurt off for him while he was jokingly calling for Buck to come clean the plate for him. Points points points. He always gets a special request half of an egg salad sandwich we he saves for later and so I pulled that off as well and realized there was strawberry icecream. He had that in his hand when I left.
His blood pressure was very high this morning, but when they took it on our way to the roof it was 134/89 - not bad.
He has already done a lot of his chanting saying he serenaded the entire floor. She had left him a chore list to work on in her absence. Which was on his table in a waterproof sleeve.
He is much better in person in his volume, annunciation and air movement in his lungs when he speaks than on the phone. I asked about his strength level and he said he feels stronger. He said the PTs were going to kick his ass today with core crunches. They make him lay on his back then lift his torso just so he can see his toes then slowly go back down. That core strength will help with his balance I think? He thinks its close to torture but knows he has to do it...for points of course.
He report his vision is mostly blurry, but sometimes double and less often..he is certainly able to discern someones name on a small little clamshell phone...and he had a wonderful full on shower this morning and it felt great to be under running water. Hes going to need a hair cut here pretty soon.
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| Awesome picture of the day :) |
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